Anyone that has had a child die would agree that celebrations can be very hard. It’s difficult to enjoy such events when you know that your child will never have another birthday or Christmas morning. We’ve made it through a year of these dates since Allie has died. Each one is a challenge, but we’ve completely changed our traditions and survived. But there is one date that we skipped entirely this year. That date is our wedding anniversary.
It’s awesome to see how much our Head For The Cure Team has grown in the past couple of weeks. We are up to 149 registered participants, so we only need 51 more sign-ups to reach our goal of 200! We are placing our Team Little Owl t-shirt order soon. If you are new to the team, you will need to be registered by August 8th to get a purple Team Little Owl shirt. We are so thankful for everyone coming together to honor Allie’s memory, and your support means so much to us.
It has been just over a year since Allie died from gliomatosis cerebri. We have tried our best to be open about our journey. We are fortunate to have family and friends that take an interest in how we are doing, and they understand that it continues to be a great struggle to function daily without Allie. People are curious, and we get all types of questions about how things are at home. When asked, I have always tried my best to answer these questions honestly and openly. Here are the three questions that seem to come up the most often. Some of you know these answers already, but others may have wondered the same things.
Thank you to everyone that has joined the Head For The Cure Team Little Owl so far. We already have 107 members registered! We are overcome by the response again this year, and we are very excited for the run/walk on August 24th. We only need 86 more team members to beat last year’s team size! It will be a great event to honor Allie’s memory.
General registration runs through July 10th and
Allie loved singing songs and listening to music. Baby Beluga was her favorite lullaby, and we would sing it to her nightly at bedtime. Besides Baby Beluga, Allie preferred the music of Hot Buttered Rum. If you aren’t familiar with Hot Buttered Rum, they are a bluegrass band out of San Francisco. So they don’t typically get a ton of fanfare from the preschool crowd. However, HBR did a side project where they recorded traditional and original children’s songs for a Discovery Kids music player.
Allie received the Discovery Kids music player as a Christmas gift from Popos and Grandma Rita when she was two. Allie carried the music player around the house, and she and Evie enjoyed dancing to the songs of Hot Buttered Rum. They would turn it up loud, and tell us they were having a party. Kyle and I would jump fifteen years in our mind and talk about the type of party the girls would have then. We thought for sure that they would each still be here and still dancing to loud music together.
After Allie suffered her first seizure in March,